Q&A with Australian Health Practitioners
Managing Ehlers-Danlos syndrome
I am diagnosed with Ehlers-Danlos syndrome by a geneticist. My condition is declining and I am becoming more disabled. My joints (pain, decreasing mobility, soft tissue damage, arthritis), gut (motility issues, IBS and food intolerances), postural orthostatic tachycardia syndrome, mast cell disorder, sleep (pain) and energy (medical fatigue with functionality reduced to 30% on the Bell's Scale of Fatigue) are major symptoms. Who can help me manage these symptoms as they cross a number of specialisations?