Hi, I'm 44 and have suffered with SI joint pain for over 15 years. Initially injections would ease pain for around 6 months at a time. Over a number of years I continually had regular injections. After a few years it was getting worse and further scans showed I had an infarction in the right joint (which is the worst side) I could no longer have the injection as surrounding bone was being damaged.
the past 4 years have been horrible. I have tried acupuncture, physio, specialised physiology, chiro, meds which ended up causing GORD. I have seen OT,s, Rheumotoligist, pain specialists, orthopedic surgeons and a naturopath. I had to give up work 2 years ago. (Suffering the grief and depression on the way) I have been on morphine type pain meds for the past 3 years. Norspan, palexia, endone as well as plaquenil, pariet, pristiq & seroquel. I also take iron, magnesium, multi vitamin & laculose.
I can't sleep for more than a few hours without having to get up and walk around. I can't sit for very long in the same position for more than half hour. I can't drive anymore, can't go shopping or boating or fishing or much of anything really. I can't stand long enough to wash my hair!
so far I have tested positive for auto-immune but negative for BL27 gene. My dad suffers from the same symptoms but only mild.
the trouble now is I don't see any light at the end of the tunnel. I can no longer get to my appointments an hour away to see the pain clinic at John Hunter Hospital. I was declined for community transport assistance. I'm feeling like my gp, specialists and pain clinic aren't looking at finding what's going on to fix the cause. It's all been managing the pain.
Im not managing to live any sort of normal life. My fiancé works away and is only with me 2 days a week. I can't imagine living like this for the next 30 whatever years. I need a specialist who is going to look at my scans and say they can help with the cause, and fix it!
If if anyone knows someone who may be able to help me I would really appreciate you letting me know. I haven't even been told about any surgery options
for those going through the same thing, please be careful having too many cortisone injections! And please know you are not alone. Hugs xx
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