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  • Q&A with Australian Health Practitioners

    How to manage life with Ehlers-Danlos syndrome?

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    Congenital & Genetic Conditions Ehlers-Danlos Syndrome
    I have Ehlers-Danlos syndrome along with the symptoms of muscle weakness, chronic fatigue and dental problems. How can I care for myself on a daily basis?
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    • Michelle O'Sullivan
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    Michelle O'Sullivan

    Occupational Therapist (OT)

    I have extensive experience in the management of hypermobility disorders including Ehlers-Danlos Syndrome. I work exclusively with patients with hypermobility conditions. Having graduated from the … View Profile

    EDS is an unpredictable condition which often causes pain, fatigue and a range of other symptoms. Management of EDS is important so that you can maintain your independence as much as possible. 

    Pacing is going to be the best technique you can learn to help you self manage your pain and fatigue. This involves not overdoing things on the days you feel well and have lots of energy, as this often backfires and catches up with you the next day. 

    Physiotherapy can be helpful in learning exercises to increase and maintain muscle strength and mobility. Hydrotherapy can also be very beneficial for people with EDS. 

    Seeing an Occupational Therapist to help with maintaining your independence in your activities of daily living is also important and can greatly improve your quality of life.

    Dental hygiene should be managed by your dentist.

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