The Association of Genetic Support of Australasia facilitates support for those affect directly or indirectly by rare diseases (80% of which are genetic in origin). …
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AGSA has profiled this condition in our newsletter with a family story. Please contact AGSA for further information.
my 11 week old granddaughter has been diagnosed and we are struggling to find out much information. some information that I have been given that she may not live till past 2-3yrs ? she has spina bif…
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