The Association of Genetic Support of Australasia facilitates support for those affect directly or indirectly by rare diseases (80% of which are genetic in origin). We offer a wide range of support options, including seminars, sibling workshops, networking and peer support events with other carers, telegroup counselling and annual information days.
AGSA is recognized as a peak body in patient support and collaborates with similar organisations and health professionals both nationally and internationally. We have a rare disease register representing over 1200 rare conditions which enhances the ability for contact between families, individuals and support groups.
Answers contributed by Association of Genetic Support of Australasia