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Association of Genetic Support of Australasia

Organisation

66 Albion Street
Surry Hills 2010
About
The Association of Genetic Support of Australasia facilitates support for those affect directly or indirectly by rare diseases (80% of which are genetic in origin). We offer a wide range of support options, including seminars, sibling workshops, networking and peer support events with other carers, telegroup counselling and annual information days.

AGSA is recognized as a peak body in patient support and collaborates with similar organisations and health professionals both nationally and internationally. We have a rare disease register representing over 1200 rare conditions which enhances the ability for contact between families, individuals and support groups.

Answers contributed by Association of Genetic Support of Australasia