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  • Q&A with Australian Health Practitioners

    Is Ehlers-Danlos syndrome preventable?

  • Find a professional to answer your question

  • 1

    Agree

    2

    Thanks

    Michelle O'Sullivan

    Occupational Therapist (OT)

    I have extensive experience in the management of hypermobility disorders including Ehlers-Danlos Syndrome. I work exclusively with patients with hypermobility conditions. Having graduated from the … View Profile

    No, Ehlers Danlos Syndrome is not a preventable condition. It is a genetic condition which is autosomal dominant, and passed down through generations. There is nothing that can be done to prevent it occurring. 

    When it does occur, there are many things which can be done to help manage the condition and to decrease the likelihood of it becoming a severely disabiling condition.

  • 2

    Thanks

    Ka-Wa Purdey Lung

    Physiotherapist

    Working and helping children and their families is my passion. I worked as a paediatric physiotherapist for over 25 years. Early intervention is the key … View Profile

    I fully agree with Michelle's answer.  As a physiotherapist, I will suggest clients with Ehlers-Danlos Syndrome to learn joint protection, to do moderate exercise and to seek for specialist for a comprehensive assessment.  A lot of times, this condition could be managed reasonably well.

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