Thanks Dr Day. I posted this some 6-8 weeks back so there have been some developments since then. I went with my gut instinct “ignoring” my LMO advice given the lengthy delay to see a local Paed., rang Paed. Gastro surgeries myself outlining symptoms and was booked in to see someone within the week. We then went for scopes a few weeks later and got results from biopsies back last week. My son has Chrohns disease (mild to moderate but extensive areas). No Coeliac disease. And while it has cost us a significant amount of money because we went the private route to get speedy action/results, it has been worth it to get a diagnosis within a couple of months of symptoms arising.
Having said that and having read up lots of info on Chrohns, I can't help wondering if our presentation at A+E late last year with headaches, temps., blurry vision/seeing double as my son described it, nausea etc wasn't an indication that something was severely amiss (or starting) and that I wasn't just being an over-reactive mum. He then went on to have diarr. more regularly, first across the day and then the night soon after I did my original post, also complaining of a sore mouth and leg pain. Having learnt about the digestive system at school recently, my boy was also able to pin-point his pain to his intestine!
We have started medications (what a nightmare!), will be starting EEN in the next week or so and will be attending the IBD clinic in Sydney in the next couple of weeks. Heres hoping we achieve remission sooner rather than later.
Thnaks again for taking time to respond.
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