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  • Q&A with Australian Health Practitioners

    How to care for oneself with Fabry disease?

    Hi all, I have Fabry disease and find it extremely difficult to address/manage all of my symptoms. I experience body pain almost everyday, fatigue, nausea and now I am experiencing kidney/renal complications. Any tips/advice?
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  • Team HealthShare

    HealthShare Member

    Fabry disease is a lifelong condition, hence, tracking your symptoms would be beneficial when exploring treatment options with your physician. It is advised to have regular check-ups with your doctor and to monitor your symptoms. Fabry Pain Diary is a free smart phone app which helps patients diagnosed with Fabry disease to monitor and records their pain symptoms. For further information on how to care for oneself with Fabry disease visit: https://www.fabry.com.au

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