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  • Q&A with Australian Health Practitioners

    Is albinism associated with any health issues?

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  • The Albinism Fellowship of Australia (AFA) is a national, non-profit organization established in 2005. The AFA is a registered charity. The fellowship is run by ... View Profile

    There are some syndromes that have albinism as a part of them, including Hermansky Pudlak Syndrome (HPS) and Chediak Higashi Syndrome. These conditions are associated with other significant health problems, including bleeding issues, and problems with internal organs.  Please see  http://www.hpsnetwork.org for more information. 

    Oculocutaneous albinism (OCA) and ocular albinism (OA) predominantly affect the eyes hair and skin (OCA) or eyes only (OA). Effects are on vision, risk of skin cancers and solar damage, possible risk of vitamin D deficiency and possibly higher risk of headaches and neck pain. Psychosocial impacts of these conditions may lead to a higher rate of stress and mental health issues.                                                                                                                  

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