Can you please tell me; as close as you can - when I'll probably die of this disease?
Our healthcare system has been getting worse; and the first few times I called ambulance approx 5yrs ago - they had NO idea what it was and put me on psych floor.
Of course I've quit smoking & take my medicines religiously - but as a child I've watch almost all the family members in my mother's side die of this horrible death and it doesn't seem to have the impact on healthcare pros it once did - dunno; maybe cos they consider it self inflicted.
All I know is that I have had it years longer than anyone in my family ever had before dying from it..
The majority had it between 10-15yrs. I passed that milestone long ago!
It is so extremely frightening, because I feeling I'm being suffocated to death just by getting up & walking to another room.
I try to stay possitive, but I really don't have more than 1wk a month out of 4 of I'm lucky.
I'm a widow, have no children or family. I have to be honest with you that as the pain gets worse & I never can have even 1 good day (it also makes it hard to get health care!) - then I intend to use my god-given right to choose my own time of dying with dignity. I still plan to leave organs, eyes, kidneys, skin, blood, etc for use of helping another.
If course, it'll take a doctor to work.with me (and respect my DNR) as well as keep me alive if necessary so viable body parts are not wasted!
I am willing to go through the pain for the greater good; but not to stay alive like the person I've become.
I know it's happening soon; but don't know what to do about it.
No-one pays attention enough and I'm only able to get an appointment once every 6-8mos!
I know I wouldn't last more than 2 yrs max.
Thank you for your help;.and if you know someone I can call to consult with (I live in Westmead); please, I get it you - send along their office phone #.
33 Moree Ave
Westmead, NSW 2145
0450 499 130
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